SisterSpace: I Will Not Write a Blog for Infant Mortality Awareness Month

This is not a blog for infant mortality awareness month. Something so weighty deserves more than to be relegated to web log. I will not make any witty observations. I will not use any metaphors, similes, idioms, or analogies. There will be no alliteration or onomatopoeia used to help you get it.

There will be no opinions, only facts. The jarring sort that aren't typically welcome in a blog. This will not be entertaining. You will probably not "Like" this.

This is my virtual moment of silence for the babies who needlessly die every year. This is my silent cry in the blogosphere for greater awareness in the African American community where our babies are 2.3 more likely to die before their first birthday than in the white community. This risk exists for all black women regardless of income or education.

This is my anti-blog for the unborn who deserve to live to see their first birthday and my homage to those who didn't.

• Currently, the national infant mortality rate for Black babies is 13.7 per 1,000, compared to a rate of 5.6 per 1000 for White babies, 3.5 per 1000 for Asian babies, and 5.3 to 6 per 1000 for Latino babies.




• Black babies are four times as likely to die as infants due to complications related to low birth weight as compared to non-Hispanic white infants.




• African Americans have 2.3 times the infant mortality rate as non-Hispanic whites.




• African Americans had 1.8 times the sudden infant death syndrome mortality rate as non-Hispanic whites.




• College- and graduate-school educated black mothers have a higher infant mortality rate than white moms who didn't finish high school.




• The infant mortality rate for African American mothers with over 13 years of education was almost three times that of non-Hispanic white mothers.




• Black women who get prenatal care in the first trimester have double the infant mortality rate of white mothers with first-trimester care.




• Only 17 percent of all U.S. births were to African-American families, but 33 percent of all low-birth weight babies were African-American, according to one report.




• Black women with similar levels of prenatal care as Hispanic women (generally less educated and with lower incomes than blacks) have higher rates of low birth weight, preterm deliveries, and infant mortality.




• According to Dr. Michael Lu, assistant professor of obstetrics and gynecology and public health at UCLA, researchers have found that even when they control for such varied factors as poverty, housing, employment, medical risk, abuse, social support and so on, 90 percent of the differences in birth weight between black and white moms remains unaccounted for.

"Most studies have looked at black-white differences during pregnancy, for example, differences in prenatal care utilization or maternal behavior," he says. "What we're finding is that these differences really explain very little of the disparities in birth outcomes."

My Sister in the Struggle to Reduce Infant Mortality

There are sisters. And there are sisters. I consider Phyllis Rabinowitz to be my sister in the struggle to save infants who never make it to their first birthday--a cause I am passionately committed to. Phyllis joined the fight after enduring a mother's worst nightmare.

On July 21, 2006, her daughter Rebecca Ava died at 8-day-old after being misdiagnosed in the emergency room. The trauma began with their ER experience.

"The doctor was so dismissive. He was like, 'This is just a common cold. I've seen children for 20 years. I've got to get to a real emergency down the hall.' . . . No matter what my husband and I asked for, the whole experience was very condescending. We knew she was sick," Phyllis recalls.

They refused to readmit her. By the next morning baby Rebecca was septic and bleeding from the nose. Phyllis will never forget the sight of her husband desperately performing CPR and the seemingly endless ride in the ambulance, but baby Rebecca didn't make it. The Rabinowitz's ordered a state autopsy, independent of the hospital, which revealed that baby Rebecca had a common enteroviral infection, not a common cold. Had baby Rebecca's symptoms been properly diagnosed and treated she would still be here today.

Instead Phyllis and her husband, Andrew, learned in the most horrible way that most emergency room physicians are not properly trained in pediatric emergency care. In fact, very few hospitals have all the necessary equipment to properly treat babies.

"Like any parent, we were profoundly sad and angry. I was in a deep depression. We started researching for answers. We knew something was not right. We learned how all ERs are not created equal when it comes to being ready to treat infants," Phyllis says.

And then, sitting in their den, with supportive friends and family, Phyllis and her husband decided to do something. The R Baby Foundation http://www.rbabyfoundation.org/index.php was born with the distinct purpose of saving as many babies lives as possible, particularly those have some sort of viral infection in their first month of life, by improving pediatric care in emergency rooms across the country.

Today their work includes, raising awareness around infant mortality and emergency room care, providing training opportunities for anyone who touches a baby, providing life-saving equipment to hospitals and parent education (check the website for a soon-to-be-released 10-page guide for parents).

I'm a proud supporter of the R Baby Foundation and I am always inspired by Phyllis' commitment to teach parents how to advocate for their children. This for me is especially important in the African American community, where the quality of the healthcare we receive is often tainted by bias, stereotypes and living in underserved communities.

This year, the MochaManual team and I will be once again participating in the R Baby Foundation's Mother's Day Run/Walk http://www.rbabyrunwalk.org/Markslist/ext/rba/home.do?masterCampaignId=3130 on Sunday, May 9th in Central Park, New York City, to raise awareness and funds to improve emergency pediatric care for babies. There are plenty of activities for the whole family. Visit www.mochamanual.com for details for our team. What a great way to start my Mother's Day!

As for life after loss, Phyllis said it best: "My baby only lived 8 days, but she's in my heart everyday. And she inspired us to help save other babies so they could live their lives."

We Need Our Village Back

For some time now, I've been lamenting the demise of our "village."

When our parents grew up the whole neighborhood helped raise them (and probably had spanking privileges). And when I grew up you could best believe that any neighbor would quickly tell my mother or father if I was ever seen someplace I wasn't supposed to be. There was an "we're all in this together" mentality and a thinking that my child is my responsibility and your child is my responsibility because at the end of the day, we are all in this community together and one success is our collective success and one failure is our collective failure and affects us all.

Somewhere along the way, we lost this village mentality. The changing economic climate has dictated that we move away from relatives or that we move often because of job opportunities. As a result, we never really grow roots in our communities anymore. We don't have our extended family of aunties, uncles and grandparents nearby anymore.

This week Women's eNews hosted a screening of Tonya Lewis Lee's powerful documentary on reducing infant mortality and improving maternal health, in celebration of the second year of The Black Maternal Health Project. It was a full house. The film, Crisis in the Crib--Saving Our Nation's Babies (view the trailer here) speaks directly to preconception health, mobilizing young people as peer educators in the movement and putting a face and voice to the infant mortality issue. The conversation afterward with Tonya and our fabulous guests was even more empowering.

We couldn't understand while infant mortality remains a taboo topic in our country's agenda. Even when you remove African American statistics from the equation, the United States still had an embarrassing ranking as far as infant mortality is concerned. We couldn't understand why maternal health is absent from the current debate about healthcare reform. And we certainly couldn't understand why very little is being done to save our most vulnerable population. There was so much that didn't make sense.

But here's what was crystal clear. We can't wait for the government to solve this crisis. Yes, we have to push for laws. But we also have to advocate in our communities to remove some of the social barriers to our health issues. We need to advocate for safe places to exercise, removing toxins from our communities, having fresh fruit and vegetables available in our communities and more.

It was clear that we need our village of womenfolk. And then some.

In Crisis in the Crib, the 'Healthy Baby Begins With You' Campaign,  takes on a peer education model. It uses college students to go into their own communities and also speak to high school students about preconception health. It goes back to that "village" mentality.

That night of the screening we deployed our own village, a room full of women of all races with personal and professional interests in embracing mothers and producing healthy babies. We thought of ways we could let our own network know about the OMH campaign, spread more awareness about the problem, or help be a part of the solution.

We saw the powerful ripple effect that could be sparked just from those in the room doing one thing. For that evening, we brought our village back. And it felt oh so good.

What can you do to help bring our village back to our babies? What more can we be doing? I'd love to hear from you. Please post a comment here.

Bruce Jenner, Breastfeeding and Keeping it Real with the Kardashians

Earlier this week, after a long day of deadlines and meetings, I was desperately in need of a mindless television moment and channel surfed my way to the "Keeping up with the Kardashians" reality TV show.

 

Have you seen this quality production?

 

Three sisters on an unclear mission. One became famous for having a big booty (an apparent first for a non-black or Latina person), another recently married an NBA superstar after two months of dating, and alas, the third, Courtney, is very pregnant. At least in this episode she was. (I know from a recent trip to the supermarket checkout line that she has already had her baby and sold all the pictures.) But I digress.

 

In this particular episode, the often reviled baby daddy, Scott, did the unthinkable. He didn't show up for a breastfeeding class. O.M.G! Courtney returns home in a huff. Scott says, he didn't think he needed to go to a breastfeeding class because it has nothing to do with him. Courtney lets him know with a few well-timed F-bombs that it absolutely does have something to do with him and if he doesn't "get on her team" immediately then the relationship is over. Drama!!

 

Scott, feeling like he just received an unwarranted tongue lashing from a hormone charged pregnant woman, heads over to talk to Courtney's step father, Olympic great Bruce Jenner. Scott tells Bruce his story. "Breastfeeding is not about me," he says, looking for manly sympathy. Bruce, in his infinite wisdom and having scaled a few hurdles in his own life, sets him straight. "It is about you. It's about support."

 

Ahhhh, a teachable moment in reality TV. I feel like notifying some authorities.

 

But yes, men, breastfeeding is about you. And you don't have to have graced a Corn Flakes box to know it. In fact, many moms say their partners' attitude and support played a major role in whether or not they continued breastfeeding. This is particularly true in the black community.

 

Consider these striking findings from a recent survey by the Bravado Breastfeeding Information Council, or BBIC. (Full disclosure: I'm an advisory board member).

 

When asked to choose the person who had the most important influence in her life as a nursing mom, almost three times as many women selected their partner (54%) over their mothers (21%), even if their mother had breastfeeding experience.

 

Approximately 70% of mothers consider their partners support to be extremely important to their overall confidence as a new mom, and their overall well-being as a nursing mother.

 

With our historically low breastfeeding rates and our woefully high infant mortality rates, it is really important to get our men on board. They are an important part of our "village."

 

If you or your partner don't know what he can do, I found these great tips for Dads.  Share them with your man.

 

1. The first thing a father can do to promote success is to create a positive family atmosphere toward breastfeeding. As a practical matter, breastfed babies need to accompany their mothers whenever possible. A father who views a baby's continual presence as intrusive will subtly undermine breastfeeding. The father who naturally assumes that his baby will accompany the couple to restaurants, movies, dinner parties, and meetings has given breastfeeding his strong endorsement. There's a big difference between a man who agrees to let his partner breastfeed and one who deliberately creates an atmosphere of success.

 

2. Fathers can play a key role in bolstering their breastfeeding partner's confidence by showering them with compliments, praising their efforts, and offering words of encouragement. When a woman is under extreme stress, a man may not know how best to support his mate. He may be uncertain whether she wants to hear, "Don't give up; you can do it!" or "You've done your best. It's okay to switch to bottle-feeding." If you are not sure how to respond to your partner, try explaining that you don't know exactly what to say, but you want to support her in any way you can. Just being a sounding board might be all she needs on a specific day.

 

3. A father can help in so many ways that it's hard to imagine why many men feel left out when their wives breastfeed. A father can go to the baby when he or she awakens and bring the hungry infant to his wife. While the mother is nursing, he can pour her a nutritious beverage, massage her shoulders, compliment her, and lovingly admire his nursing baby. After the first breast, he can burp the baby and help arouse the infant for the second side. When the feeding is complete, the father can change the infant and put him or her down to sleep.

 

In the BBIC survey, moms said, partners could best help by changing diapers, listening to them, praising them, supporting them with family and friends, and burping the baby as key examples of support. 45% of moms would like more help with chores and 36% would like their partners to get up with them at night.

 

So you see Scott, and thousands of other Scott-like men, we do need you. There is much for you to do. It is about the support. Thank you Bruce Jenner.

 

Watch this video to see the webcast of the full release of the BBIC's findings on women and breastfeeding.